Advocacy Blog

September 17th, 2018

Today I want to reach out about an important topic – PANDAS/PANS. PANDAS is an acronym which stands for Pediatric, Autoimmune, Neuropsychiatric Disorder Associated with Strep. This disorder affects 1 in every 200 children. Also, I’m pleased to let you know that Sara Platenberg and I will be attending the PANDAS/PANS Standard of Care Summit on October 4th in Springfield, Illinois.¬†Please take a moment to click this link for information. ¬†

Also, click the link below for a short video.


February 9th, 2018

Today I want to reach out to you about a topic that comes up quite frequently and has our advocates concerned. As we are reviewing Goal Updates for our clients, a familiar theme is emerging. We see too many updates that state “sufficient” or “progressing” or “achieved”, with no accompanying data. The data that corresponds to the IEP goal is the specific manner in which we can determine if the student is making progress. Every IEP goal has a specific Procedure or Evaluative criteria with which the goal is measured. For example, if a student has an IEP goal for written expression, and the goal states that given a graphic organizer, the student will write a paragraph with a topic sentence, three details, and a concluding sentence, scoring 80% or higher on a writing rubric, then when you get a goal update, you need to have data on the paragraphs he or she wrote, the dates, the graphic organizer used, and his or her score on that writing piece.